Russia Adoption Blog

12/12/06

Medical Issues

Posted by : Rhonda in Russia Adoption Blog at 12:48 am , 599 words, 68 views  
Categories: The Process


I was reading this article about a couple that declined their first referral, because ultimately, when they met their little girl, it didn’t feel right to them.

I read about how they went through the process.

Regardless of whether a child is determined to be high- or low-risk for significant health issues, after you’ve met and interacted with the child, you can find yourself making the ultimate decision with your heart and not the medical records.


They were very careful. They hired doctors, videotaped the child for potential medical issues, and studied behavior intently. They’re not the only ones. I know people who have flown a doctor with them to Russia.

When we accepted our referrals, we had two sweet children standing in front of us with very scary medical reports. We knew that the medical reports from Russia weren’t always trustworthy, so when we met the children, we had no idea what to expect.

Basically, we spent three days with the kids, and we didn’t see anything that indicated health problems, other than Bonnie needed vision correction. We went with our gut and accepted the referrals, regardless of the medical reports. We had a good feeling about it, unlike the couple in the article.

When we returned to the U.S., we sent videos of the kids to a pediatrician, and she gave us the thumbs up. But, I have to wonder, can a doctor really diagnose most things over a television screen? Now that Bonnie and Clyde are home, we know for certain that the medical reports were inaccurate.

Did you use an IA doctor when you adopted? Did you take the medical reports seriously?

An aside: This is a great site explaining Russian medical reports, along with suggested tips for approaching medical reports.

1) Gather the facts - information about the pregnancy and delivery, prematurity, numbers and dates (i.e. growth measurements), specific illnesses and diagnoses, specific physical findings, specific lab results and other investigations, developmental milestones.

2) Weigh the facts - Lab results may be unreliable, cranial sonograms are usually over interpreted. Consultant's reports may consist of little more than a series of unsupported and unusual diagnoses. The amount of reliable information available may not be great, so it is better to determine what is trustworthy and interpret this carefully.

3) Integrate other sources of information -Videos are important if available, information and observations of the child by a trusted agency representative are important, etc.

4) Obtain a professional opinion - reports must be interpreted in context, but do not forget that while over diagnosis is common, under diagnosis can be a more serious problem.

5) Request more information if necessary - If yellow flags are apparent in the medical report, now is the opportunity to follow them up. At the same time, vague requests to agencies for more medical information usually yield only a greater volume of worthless material. Consult with your medical advisor and make any requests for further information focussed and realistic. (I have seen apparent problems evaporate by a simple request for repeat head measurements). Remember also that your agency must advocate for two clients. The child is also a client whether they pay the fees or not. Responsible agencies make all efforts to serve both child and prospective parent. Though nerves can become frayed, it is never the case that a reputable agency will intentionally mislead prospective parents.

6) Know yourself and your family - Some prospective parents are willing to accept more uncertainty than others. Some have different expectations. Exploration of these issues is an important part of pre-adoption counseling.



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Comments, Pingbacks:

Comment from: Lauri [Member] Email · http://adoptive-parenting.adoptionblogs.com/
we did not use an IA doctor... I got on the forums and asked around about the conditions, I spoke to our pediatrician and showed him her limited medical info and picture but in the end we went with our gut instincts that no matter what she was the child for us.

I agree with knowing what your able to handle... we were open to some special needs.. we assumed that any child coming from that setting would have special needs. That I think helped us to approach things in a different light

great post
PermalinkPermalink 12/12/06 @ 06:19
Comment from: Elle [Member] Email
We did use an IA doc, but he was unable to give us any real conclusive info. We ended up going with our gut too and accepting our referral based on what we heard from the orphanage doc and what we observed.
PermalinkPermalink 12/12/06 @ 09:50
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